On One Condition is a podcast for anyone who wants to learn about a specific health condition, hear from people living with the conditions about how it affects them and how they manage them. In this episode Kelly shares her profound journey of navigating life as a parent of a child with a rare disease, battling the healthcare system, and finding joy in small, everyday moments. Kelly’s story highlights both the struggles and triumphs of caregiving, offering insights into navigating the medical system, managing mental health, and finding a new normal.
Through resilience, advocacy, and self-discovery, she has turned her challenges into a mission to support others in the PTEN community.
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