Beyond the Mask: What I Have Learnt About Truly Neuro-Affirming Therapy for Autism and AuDHD
When we look at autism and ADHD through an outdated, traditional lens, the focus is almost always on “deficits”, what a person struggles to do, how they fail to meet neurotypical standards, or how they can be trained to blend in. But true therapy shouldn’t be about changing who you are or teaching you how […]
On One Condition Podcast
On One Condition is a podcast for anyone who wants to learn about a specific health condition, hear from people living with the conditions about how it affects them and how they manage them. In this episode Kelly shares her profound journey of navigating life as a parent of a child with a rare disease, […]
The Send Sofa Podcast
Life can be incredibly demanding, particularly for parents of childrenwith Special Educational Needs and Disabilities (SEND), who must balancenumerous appointments and therapies. It often feels like we’re managinga variety of responsibilities at once, but it’s important to rememberthat it’s okay to let some things go in order to focus on becoming thebest version of ourselves. […]
Bridging the Gap: Action and Reaction
February 2025 This weekend, I attended the 2025 BACP Student Conference ‘Bridging The Gap’, focused on new mental health professionals and where their new found careers may take them. The lecture that resonated most with me was by Dr. Beverley Costa, entitled “What can I do beyond the therapy room? Harnessing therapeutic training in social […]
Positively Rare: Empowering Stories from the Rare Disease Community
(Lemonade Life Series) This book is not just about rare diseases; it’s about finding purpose, strength, and love in life’s most challenging moments. An inspiring and life-changing read that gives voice to the often unheard. Rob Haselberg, Huntington’s disease gene carrier and rare disease advocate Positively Rare is an essential read for anyone seeking to […]
Guide to Online Therapy
What is online therapy? Unlike traditional therapy, which typically happens in person, online therapy refers to the practice of delivering mental health services over the internet — usually through video calls. Just like how traditional therapy usually covers a range of services and needs, online therapy can be varied, too, including: Individual therapy: One-on-one therapy […]
Explore Emotional Wellbeing Resources with RareMinds
Caring for yourself while navigating the challenges of a rare disease—whether for yourself or a loved one—can feel overwhelming. That’s why RareMinds is here to help. Their emotional wellbeing services provide tailored support, resources, and guidance to meet the unique needs of rare disease communities. RareMinds works closely with patients, families, and communities to create […]
Podcast: Caring for Yourself While Caring for Others
In this special episode, RareMind’s CEO, Kym Winters, speaks with Kelly Kearley, PTEN UK & Ireland Patient Group Manager, about her personal journey of learning to care for herself while caring for her son, who lives with PTEN Hamartoma Tumour Syndrome (PHTS). Kelly shares her challenges, insights, and the importance of balancing self-care with caregiving […]
Podcast Episode: My Son with PTEN
I’m excited to share my latest podcast episode, where I open up about my journey as a parent navigating life with my son, who has PTEN. This deeply personal story highlights the challenges, triumphs, and everything in between, offering a glimpse into the reality of raising a child with a rare genetic condition. In this […]
